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Lupus doesn’t have a "look," but it does have a voice. 🗣️

Banner word May is Lupus Awareness Month. And Physical Therapy logo

ִֶָ. ..𓂃 ࣪ ִֶָ🦋་༘࿐ May is Lupus Awareness Month 💜.

For many, Lupus is an invisible struggle.  But as a Physical Therapist, an athlete, and someone living with this condition, I know that while the symptoms may be hidden, the impact on mobility and quality of life is incredibly real.

The Reality of Lupus

Lupus is a chronic autoimmune disease in which the immune system loses its ability to distinguish between foreign invaders and the body’s own healthy tissues.  This leads to persistent inflammation, debilitating fatigue, and significant joint pain.

The statistics are a call to action:🚨

🔶Nearly 5 million people worldwide are fighting this disease.
🔶Systemic Lupus Erythematosus (SLE) is the most common form, affecting millions globally.
🔶There is a critical disparity in health: Afro-Caribbean and US populations face some of the highest incidence rates in the world, yet the disease remains frequently underdiagnosed. 📈

Movement as Medicine

In my Recovery Room, I tell my patients, "movement is medicine." As a Lupus Warrior, I know that some days, medicine is literally a bitter pill to swallow.  When your joints ache, and your energy is depleted, exercise feels impossible.  However, gentle, intentional movement is key to maintaining flexibility and reducing long-term stiffness.

Expert Tip: One Gentle Exercise for Joint Pain🔥🔥

If you are experiencing a flare or chronic stiffness, try Quadruped Rocking.  This is a low-impact way to move the hips, knees, and spine without putting heavy weight on the joints.

Illustration of 3 stages of performing the Quadruped Rocking
The Setup: Start on your hands and knees (all fours) on a soft surface or yoga mat.  Keep your back flat.
The Move: Slowly shift your hips back toward your heels as far as is comfortable.
The Return: Gently rock forward and back to the starting position.
The Benefit: This promotes joint lubrication and gentle stretching of the lower back and hips without the impact of standing exercises.  Perform 10–15 slow repetitions.

🔑When performing this exercise, remember to breathe deeply and only move within a range that feels restorative for your joints.

🛑 When to Stop: Safety Guidelines

While movement is a key part of managing Lupus, listening to your body’s signals is even more important.  Stop the Quadruped Rocking exercise and consult your healthcare provider if you experience any of the following:

❌Sharp or Stabbing Pain: If the gentle rocking causes a sudden, sharp pain in your joints or back, stop immediately.
❌Increased Swelling: If you notice a visible increase in joint swelling or heat in the hours after exercising.
❌Extreme Fatigue: If the exercise leaves you feeling "wiped out" or triggers a crash rather than a gentle sense of movement.
❌Numbness or Tingling: If you feel "pins and needles" or a loss of sensation in your hands or feet while in the quadruped position.

🚩Pro-Tip: 

During a lupus flare, it is okay to rest.  Sometimes the best movement for your body is simply deep breathing and gentle stretching.  Always honor where your body is today.

👀 View one of my journey posts on Instagram here

Shining a Light💡🕯️

Every step taken by someone with SLE is a victory.  This month, let’s advocate for better research, faster diagnoses, and stronger support systems for our community.  Keep moving, stay strong, and let’s find a cure. 🏃‍♀️💜

🌐Explore more resources on Lupus here: lupus.org/resources or visit my website here Hip & Disease Care  

I would love to hear from you.  Share your story in the comments.⬇️⬇️
🗣📢Medical Disclaimer: This information is for general knowledge and is not medical advice.  Consult with a healthcare provider or physical therapist before starting any new exercise routine.

📲Follow me on Social Media:  

 #LupusAwarenessMonth #LupusWarrior #PhysicalTherapy #AutoimmuneDisease #ChronicIllness #InvisibleIllness #SpoonieLife #LupusResearch


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We would love to hear from you! Please share your thoughts or questions about movement and recovery below. While we can’t provide specific medical advice here, we welcome a healthy discussion. Let’s get moving together!

Medical Disclaimer: This information is for general knowledge and is not medical advice. Consult with a healthcare provider or physical therapist before starting any new exercise routine.

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